Professor de Comunicació en la Universitat CEU Cardenal Herrera de València. Director de l’Observatori sobre Malalties Rares (OBSER) de la Federació Espanyola de Malalties Rares (FEDER).
Rare diseases (RDs) are those that affect fewer than five people in every 10,000. There are around 7,000 RDs, they are difficult to diagnose
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